What Does Support Mean to You? The Community Group Poems from People Living with Rarer Dementias, edited by Lawrence Wilson, Facilitating Poet with contributions from 177 people living with rarer forms of dementia and their care-partners
Recordings of poems, read by facilitating poet Lawrence Wilson
DATA SET for: ‘Misdiagnosed and misunderstood’- Poetry as a co-created research methodology across geographical boundaries for rarer dementias: The electronic poems
This data set contains 27 completed poems from 71 participants (9 groups of people impacted by rarer dementias in Canada, England, Singapore and Switzerland), explanations of the poets’ creative process, and source material (original words) from people living with rare dementia and carers who responded to a series of three prompts over a 12-week period. Data was collected between 2021-2022 as part of the Electronic Poems Project within the Rare Dementia Support Impact Study.
Developing Poetry as a Research Methodology with Rarer Forms of Dementia: Four Research Protocols
‘Misdiagnosed and Misunderstood’: Insights into Rarer Forms of Dementia through a Stepwise Approach to Co-Constructed Research Poetry
“A torch, a rope, a belly laugh”: Engaging with the multiple voices of support groups for people living with rare dementia
Shouting from far away: three poems about living with speechlessness
Books of poetry can be purchased through The National Brain Appeal shop, raising funds for Rare Dementia Support.
A Life in the Day of PCA – An illustrated book of poetry created by two RDS members