Greengross Arts for Brain Health

Changemaker Conversation. Thursday 18 January 2024

The event also welcomed Novilunio, a non-profit association dedicated to promoting the quality of life and dignity of people living with dementia and their families in Padua, Italy.

RDS clinical lead, Prof Seb Crutch and Rare Space co-ordinator Charlie Harrison chaired an informal series of conversations with RDS members and partner organisations as part of this online event. Learn more about the history and motivations for Rare Space, hear lived experiences of creative adaptation and the arts alongside discussion about social prescribing, access, inclusivity and how to make sustainable change in Creative Health.

Agenda and Timestamps

00:00 – Veronica Franklin Gould, President, Arts 4 Dementia, introduces

05:07 – CHAIR Professor Sebastian Crutch, Professor of Neuropsychology at the Dementia
Research Centre, University College London.
16:11 – Charlie Harrison, Rare Dementia Support (RDS) Creative Consultant, ‘Rare
Space: Celebrating the creative and cultural lives of people affected by rare dementias
27:32 – Do I see what you see? film directed by Simon Ball for Created Out of Mind
31:30 – Helena Clarke, artist living with PCA, choral singer, enjoys choral singing and
garden rewilding with her husband David Clarke.
45:45 – Chris Chadburn, living with logopenic variant PPA, and Andrea Chadburn, who
together enjoy a wide range of arts.
59:27 – Tony T, Chief Executive, Artistic Director and Rebecca Goldstone, Co-director and Producer, Sweet Patootee Arts.
1:14:00 – Monica Boulton, Healthcare Integration Lead, National Academy for Social
Prescribing


1:19:22 P A N E L D I S C U S S I O N


1:37:00 – Professor Sebastian Crutch introduces
1:38:00 – Eloisa Stella, President, presents Novilunio, Padua, Italy, and introduces
1:43:40 – Tiziano Tracanzan, advocate living with YAD, shares experiences and reflections on
museum and cultural visits in Padua and Chioggia
1:49:16 – Cristian Leorin, adjunct Professor at the University of Padua and the University of
Modena-Reggio Emilia, co-founder and Vice-President of Novilunio, discusses the objectives
and content of group meetings with people with rare dementias in Padua.
1:53:22 – Francesco Parisotto, who lives with Cadasil, reads three poems and speaks with
Cristian about the impact of poetry and writing on his wellbeing
2:00:00 – VFG Thanks and close

A full transcript of this event can be found here.

The event was created in partnership with Veronica Franklin Gould and Arts4Dementia, more information about this series of global webinar debates can be found here.

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